Kerry and Mila’s Journey

Meet Kerry and Mila, a mum and daughter navigating their tube feeding journey. Watch their story unfold in an inspiring three-part video series.

This article shares Kerry and Mila’s experience of tube feeding under their individual care plan given by a healthcare professional. Please don’t change a care plan without speaking to a dietitian.

Series Overview

In this three-part series, Kerry shares the story of her seven-year-old daughter, Mila, who lives with cerebral palsy. Mila has dystonic cerebral palsy affecting all four limbs and has a feeding tube fitted into her jejunum. Kerry and Mila share a snapshot into their everyday lives from sociable days out, travelling abroad for therapy and enjoying some festive ice skating. Each episode in this truly honest and inspiring series allows viewers to follow their experience.

Episode 1

In the first episode, we get to know Kerry and Mila. Kerry shares their typical morning routine and we watch Mila enjoy some play time at an inclusive park in her walker. Follow more of Kerry and Mila’s journey by watching Episode 2.

Episode 2

In the next episode, Kerry and Mila have travelled to Canada for Mila’s therapy session. Starting with occupational therapy for Mila’s sensory needs, upper body and core strength, followed by physical therapy for Mila’s weight bearing and balance, leading on to speech and language therapy, finishing with rebound therapy for her balance. We see the preparation needed to make these trips possible from medicine prep and travel planning. Watch Episode 3 for the final part of Kerry and Mila’s video journey.

Episode 3

In the final episode, we join Kerry and Mila for some festive fun on the ice, highlighting that festive activities can be made inclusive for all. A lovely conclusion to the video series sharing a glimpse into Kerry and Mila’s life from days out to therapy sessions. Kerry hopes their story will inspire parents and caregivers on their own tube feeding journeys.

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Nestlé Health Science has worked with healthcare professionals and families to create the articles and videos on this website. All views and opinions expressed are their own, and may not always reflect those of Nestlé Health Science. Tube feed formulas are foods for special medical purposes for use under medical supervision. Blended diets should only be used after consultation with your healthcare professional.